CONSTITUTION OF THE ESTONIAN HEMOPHILIA SOCIETY
1. chapter GENERAL PROVISIONS
1.1. The non-profit Estonian Hemophilia Society (hereinafter the society) is a voluntary society operating in the public interest, founded on November 7, 1992, and is the legal successor of the Estonian Hemophilia Society registered in Tartu.
1.2. The name of the non-profit organization is Eesti Hemofiiliaühing (Estonian Haemophilia Society) and the location of the organization is Tallinn, Harjumaa, Estonia.
1.3. The goals of the Society are:
1.3.1. To protect the human rights, civil rights, social and economic rights of hemophilia patients;
1.3.2. To be a cooperation and coordination body in Estonia for the promotion of policies for hemophiliacs and people with disabilities;
1.3.3. To represent and protect the interests of hemophilia patients in Europe and at international levels.
1.3.4. Promote the equalization of opportunities for all hemophiliacs and disabled people in accordance with the principle of non-discrimination in cooperation with state governing and power bodies, civil societys, business sector institutions and international organizations and representations;
1.3.5. Provide training, welfare and other social services and organize joint events for hemophilia patients (camps, seminars, conferences).
1.4. The financial year of the society begins on January 1 and ends on December 31.
2. chapter PROCEDURE AND CONDITIONS OF ACCEPTANCE AS A MEMBER OF THE ASSOCIATION AND WITHDRAWAL AND EXCLUSION FROM THE ASSOCIATION
2.1. A natural person who meets the requirements for members, wants to develop activities in line with the goals of the society, obliges to comply with the society's statutes and the decisions of the general meeting and the board may apply to become a member of the society.
2.2. A natural person applying to become a member of the society must be a person with a congenital blood coagulation disorder (hemophilia A, hemophilia B, von Willebrand's disease or a person diagnosed with another coagulation factor deficiency) and their family members.
2.3. Supporting members of the society can be natural persons whose main field of activity is related to hemophilia patients, disabled people, or who contribute financially or with other supporting activities to the achievement of the society's goals.
2.4. To become a member of the society, a person submits a written application to the board.
2.5. The board decides on admission to membership of the society within one month. If the board refuses to accept the applicant as a member, the applicant may demand that the general meeting decides on his acceptance as a member.
2.6. You can withdraw from the society only at the end of the financial year. To withdraw from the society, the member submits a written application to the board.
2.7. A member of the society may be expelled from the society by a decision of the board, if he:
2.7.1. Damages the society's name or reputation with its activities;
2.7.2. Has failed to fulfill the obligation arising from the articles of society or imposed on him by the society's bodies;
2.7.3. Has not participated in any of the society's general meetings or events organized by the society in the last two years
2.7.4. Uses their membership status to create unfair competition;
2.8. Expulsion of a member of the society is decided by the board. The member whose expulsion is being discussed has the right to participate in the board meeting and present his position on the matter.
2.9. A member expelled by the board has the right to demand a decision on the issue of expulsion at the general meeting of the society following the expulsion.
2.10. There is no entry fee to become a member of the society.
3. chapter MEMBERS' RIGHTS AND OBLIGATIONS
3.1. In addition to other rights stipulated in the law and the articles of society, the members of the society have the right to:
3.1.1. To participate in the general meeting with the right to vote;
3.1.2. To be elected to the board of the society;
3.1.3. To receive information about the activities of the society from the board of the society and other bodies;
3.1.4. Use the society's property in the prescribed manner and receive the benefits prescribed for the members.
3.2. A member of the society is obliged to:
3.2.1. to follow the society's statutes and good practices;
3.2.2. Participate in the activities of the society and fulfill the obligations assigned to it by the decisions of the general meeting or the board;
3.2.3. Pay the membership fee during the financial year;
3.2.4. Notify the board of the society of their place of residence and address and social security number, as well as unknown new data for keeping records of the members of the society, no later than 2 months after their change.
3.3. Supporting members of the society do not have any property rights or obligations towards the society as a result of being a member of the society. Supporting members do not have the right to vote at the society's general meeting, they can participate in the general meeting with the right to speak.
4. chapter GENERAL MEETING
4.1. The highest body of the society is the general meeting of the society, where the member of the society has one vote.
4.2. The competence of the general meeting includes:
4.2.1. Amendment of the Articles of Society;
4.2.2. Changing the purpose;
4.2.3. Appointment and recall of members of the board and the chairman of the board;
4.2.4. Appointment and recall of members of the audit committee or the auditor;
4.2.5. Deciding to enter into a transaction with a member of the board or other body or to submit a claim against him and to appoint a representative of the society in this transaction or claim;
4.2.6. Deciding on the alienation and encumbrance of immovable property belonging to the society and movable property entered in the register and determining the conditions for the said transactions;
4.2.7. Deciding on other issues that are not assigned to the competence of other bodies by law or statute.
4.3. The board convenes the general meeting of the society at least once a year:
4.3.1. To approve the annual report;
4.3.2. In the event that at least 1/10 of the society's members request it in writing and by stating the reason, or if it is requested by the audit committee;
4.3.3. In other cases, if the interests of the society require it;
4.4. The convening of the general meeting shall be notified in writing to each member at least fourteen days in advance.
4.5. The general meeting has decision-making power if at least half of the society's members participate or are represented. If the general meeting does not have a quorum, the board can convene it a second time with the same agenda. The general meeting convened for the second time is capable of making decisions regardless of the number of members of the society present.
4.6. The decision of the general meeting has been adopted if more than half of the members who participated in the meeting are in favor of it, and the law does not provide for the requirement of a larger majority.
4.7. To change the articles of society, 2/3 of the members or their representatives who participated in the general meeting must vote, and to change the purpose, the consent of 9/10 of the society's members is required. The consent of the member who did not participate in the general meeting that decided on the change must be submitted in writing.
4.8. Voting is carried out openly or by secret ballot.
5. chapter BOARD
5.1. The daily activities of the society are managed and the society is represented by the board, which includes three or five members.
5.1.1. All members of the board (except for the chairman of the board) are each elected in a separate vote from among the candidates.
5.1.2. One member must belong to the society's youth group and one member can be a hematologist dealing with bleeding diseases on a daily basis.
5.1.3. The chairman of the board is elected by the general meeting in a separate vote.
5.1.4. The chairman and members of the board may be paid a fee corresponding to their tasks and the financial situation of the society, the size and payment procedure of which is determined by the board. The chairman of the board has the right to demand reimbursement of the necessary expenses incurred for the performance of the tasks, agreed in advance with the board.
5.2. The board members are appointed by the general meeting for three years.
5.3. The board represents the society in all legal actions.
5.4. The chairman of the board acts on behalf of the society, representing the interests of the society in all state bodies, in relations with companies, organizations and citizens without a power of attorney, disposes of the society's property in accordance with the decisions of the general meeting and the board, reports on his activities at the general meeting. In order to carry out transactions carried out on behalf of the society, the amount of which exceeds 1300 euros, the chairman must receive prior approval at the general meeting.
5.5. The board has decision-making power if more than half of the members of the board participate in its meeting, and a majority of the members present is necessary to adopt the board's decision. The competence of the board includes, among other things:
5.5.1. Management of the society in the period between general meetings;
5.5.2. Keeping records of members of the society;
5.5.3. Preparation of the society's action plan and budget;
5.5.4. Organization of accounting for the financial year and preparation of the report;
5.5.5. Use and disposal of the company's property in accordance with the requirements arising from the law, this statute and the decision of the general meeting.
6. chapter ASSETS AND ECONOMIC ACTIVITIES OF THE COMPANY
6.1. The society owns, uses and disposes independently of all property belonging to it.
6.2. A member of the society is not responsible for the obligations of the society.
6.3. The board provides each member of the society with a draft of the society's annual economic activity plan together with the previous financial year's report and balance sheet for perusal no later than 2 (two) weeks before the regular general meeting of members.
6.4. The assets of the society arise:
6.4.1. From specific allocations;
6.4.2. From the use of property belonging to the society and income from the society's activities;
6.4.3. About donations made by individuals;
6.4.4. From other receipts.
6.5. The administrative costs of the society may not exceed the rate justified by the nature of the activity and the statutory goals.
6.6. Incomes from the use of the society's property and other activities are not subject to distribution among the members of the society.
7. chapter MONITORING
7.1. The activities of the association are supervised by the general meeting. To fulfill this task, the general meeting elects an audit committee or an auditor, appoints an audit or an audit.
8. chapter MERGER, DIVISION, LIQUIDATION
8.1. The merger, division and liquidation of the society shall be carried out in accordance with the law.
8.2. The company's liquidators are members of the board or persons appointed by the general meeting.
8.3. Upon liquidation of the society, after the creditors' claims have been satisfied, the remaining property is donated to an society or a public legal entity included in the list of non-profit societys and foundations with income tax benefits pursuing the same goals.
The articles of society have been adopted at the general meeting of the Estonian Hemophilia Society on August 5, 2024.
The Estonian Hemophilia Society is registered in the register department of the Tartu City Court.
MEMBERS OF THE BOARD
Chairman: Martin Kaal
Vice-Chairman: Kaido Vaatemäe
Member of the Board: Ronet Jankovski
Representative of the Youth Council: Kristi Paats
Med. representative: Ines Vaide
Statutes in pdf format:
Statutes of the Estonian Hemophilia Society
The Estonian Hemophilia Society follows the code of ethics of non-governmental organizations, which can be found at the link below:
https://heakodanik.ee/vabauhenduste-eetikakoodeks/